A little girl who suddenly fell into a prolonged coma despite ‘all the medical evidence showing she should be awake and well’ has been diagnosed with a rare condition.Â
The girl’s mum, Allanah Alison (also known as Allanah Harris), shared a heartbreaking update on Sunday explaining her daughter Daisy has tuberous sclerosis and has fallen into a comatose state for more than 100 hours.
The condition causes non-cancerous tumours to grow on the brain and other vital organs, which then in turn causes other complications such as seizures and developmental delays.Â
The lifestyle influencer told her 223,000 followers that her once ‘bright and bubbly’ toddler was diagnosed with the condition in June after she noticed what she suspected were absent seizures, which appear as ‘staring spells’ in children.Â
The mum-of-four said these became more frequent, with Daisy having multiple seizures a day, and when she insisted she be tested in hospital she was ‘diagnosed with epilepsy on the spot’.
The doctors later found the cause of the epilepsy was tuberous sclerosis after doing a brain scan, with the condition also causing other brain disorders including focal cortical dysplasia, infantile spasms and encephalopathy.
The toddler had recently been sleeping up to 22 hours each day until she fell into a coma a few days ago.
‘Daisy has been unresponsive for over 100 hours and we have no idea when she will choose to wake herself up, this could be tomorrow but it could be in six weeks, it’s something that’s only safe for her to do when she’s ready,’ Ms Alison said.
Queensland mum Allanah Alison shared a heartbreaking update on her little daughter Daisy
The youngster has fallen into a coma with doctors not knowing how or when she will wake
The Queenslander said that her daughter has had ‘countless needles and blood tests while ”asleep” and doesn’t so much as bat an eye lid’.
‘Unfortunately there aren’t any medications or stimulants that are safe for Daisy to have to help her wake.
‘Even after Daisy decides to wake we will still have the long journey of trying to figure out what is causing this level of sleep and slow brain activity.’
Ms Alison said the doctors are already ‘bending over backwards’ to try to understand why Daisy has gone into a comatose state.
‘All medical evidence so far shows that Daisy should be awake and well, with of course the exception of her severe developmental delays. but sadly that isn’t the case.Â
‘Investigations are taking place and information regarding Daisy has been expedited to other hospitals around not only Australia but other countries to help find answers.’
The lifestyle influencer said doctors are looking for answers globally about Daisy’s condition
On top of this, doctors had diagnosed Daisy with tuberous sclerosis four years to the day after her older sister died.Â
The devastated family have thanked their supporters and well-wishers.
A GoFundMe has been launched by Daisy’s grandmother to help pay medical bills.
‘It’s financially taken a toll and has made it difficult to be able to arrange care for the other three children due to the amount of time in hospital,’ Karen George said.
‘Allanah and Brock will need to move to the Sunshine Coast where the support network is significantly greater.
‘No contribution is too small and will help this beautiful family.
‘Any excess funds available, they intend to donate to the RMH and TSC foundations,’ she said.
